ERDERA was launched in September 2024 with a budget of 380 million euros, marking a significant commitment from the European Union, Horizon Europe, and member states. Coordinated by the National Institute of Health and Medical Research (INSERM) in France, this partnership unites over 170 organizations from the public and private sectors to advance rare disease research and innovation.
This event will officially present the European Partnership on Rare Diseases (ERDERA) aimed at transforming the lives of 30 million rare disease patients across Europe and beyond.