This conference brings together global leaders from academia, healthcare, industry, policy-making, and patient advocacy to address these issues comprehensively.

Under the theme, “Sustainability in Action: Rethinking the Rare Disease Paradigm from Prevention to HTA and Access”, this year’s conference aspires to stimulate dialogue and cooperation towards advancing a comprehensive rare disease strategy that promotes sustainability and equity within healthcare ecosystems. The discussions aim to inspire actionable strategies, from enhancing prevention efforts to optimizing health technology assessments (HTAs) and ensuring equitable access to therapies.

The 5th International Conference on Rare Diseases is organized by Rare Diseases Greece (RDG), member of EURORDIS-Rare Diseases Europe and Boussias Events.